1. Tell us a little bit about yourself!
I am currently the Board's Past President after serving an incredible several years as Board President. I live in Spokane, Washington. I am an attorney and work for The Washington State Office of Civil Legal Aid. 2. When and why did you join the DSAGT Board? I joined the DSAGT board in 2019 after moving to Toledo, Ohio for my career. My mother is a teacher, and I grew up watching her advocate for inclusion for all of her students. I was able to spend a lot of time with peers that have an intellectual developmental disability. When looking for an organization to be involved with, DSAGT seemed like a perfect fit. I loved getting to know Krista and several of our families. 3. What are some future goals you have for DSAGT? DSAGT has already accomplished so many of the things I envisioned and hoped for! The community and amount of services provided by DSAGT is remarkable and so needed. I hope to see DSAGT continue to grow and expand services in all of the counties we serve. I hope DSAGT is able to play a larger role as a connector for our families ensuring they get all the services they need. 4. What are your favorite things to do in your free time? In my free time, I love spending time with friends and family especially if we are traveling to a fun place! I recently purchased a home, so a lot of my free time is spent on home projects and trying to keep my garden alive.
0 Comments
1. Tell us a little bit about yourself!
My name is Nate Seevers, I am the board treasurer. I live in Toledo, Ohio with my wife Devin and our two boys Avery (3) and Owen (6mo). Professionally I am the senior quality analyst for a large medical benefits management company based in Chicago. 2. When and why did you join the DSAGT Board? After we found out Avery would be born with Down Syndrome, my wife began looking for communities to join and organizations we could be a part of. Shortly after Avery was born, we ended up moving to Toledo. Devin reached out to DSAGT and we have been attending and volunteering at events and programs for nearly 3 years now. Discovering an opening for the treasurer role, and having prior experience in non-profit finance, presented a wonderful opportunity for me to give back to an organization that has greatly supported my family. 3. What are some future goals you have for DSAGT? I want to see DSAGT expand its influence and resources to support not only new families dealing with a diagnosis but also those who may be unaware of the organization and the community it fosters. 4. What are your favorite things to do in your free time? In my free time I enjoy spending time with my two boys! Tell us a little bit about yourself!
I recently became Board President of DSAGT. I've been on the board for almost two years. I am (nearly) a lifelong resident of Perrysburg. Grew up here, raised our family here and remained here after our girls graduated. Both of our girls and their families live in San Diego where we visit as often as possible! I worked as an intervention specialist for 15 years before becoming an assistant principal at Perrysburg Junior High. During my time at PJHS I worked primarily with teachers and students involved in 504s and IEPs. The kiddos with the most needs were my focus throughout my time there. I retired in 2014 and since then have worked as a caregiver/buddy/fairy godmother to a young man with significant needs. I've remained in the world of kids and adults with disabilities through volunteer work. I'm also a board member of Sunshine Communities, Perrysburg Schools Foundation and Engaging Opportunities Foundation. I'm a compulsive volunteer! When and why did you join the DSAGT Board? I joined the board nearly two years ago. During my involvement with Community Shares, I became acquainted with DSAGT. When Krista came on board we reconnected (she had volunteered for us at Hannah's Socks). Through several conversations, she asked me to join the board. I happily accepted. I grew up with a brother, Brian, with DS. He was born in 1964, when parents were told to send them to institutions and forget about them. My parents refused, vowing to raise him as they were raising the rest of us. My parents were heavily involved in Wood Co DD. My dad was part of the initiative to build group homes in Wood County. Naturally, through my parents, I too became a regular volunteer at Woodlane and Wood Co DD programs. Even though Brian passed away in 1979, I always knew my career would involve kids and adults with disabilities. Serving on the DSAGT board feels like "home". As I like to say, these kids and adults are "my heart" and feel privileged to have been asked to join. What are some future goals you have for DSAGT? I'm thrilled with the addition of our Adult Matters and Early Matters programs. I believe they will only further expand our support of families. I know, while it's currently a small group, our aging adults seem to have an untapped potential for programming. We are very fortunate to have a number of parents on our board representing different age groups. The critical expertise they provide will continue to steer us in the direction of creating programming that will address specific needs for our kids and adults. What are your favorite things to do in your free time? My number one activity is Facetiming with Barrett (almost 3) and Isla (just turned 1) as much as possible (when we can't see them in person.) If you've never Facetimed with toddlers, you have no idea what you're missing!! Second is visiting our girls and their families. I love to read, run, do yoga, and entertain with friends. April is Autism Awareness Month! Autism Sprectrum Disorder (ASD) refers to a broad range of conditions characterized by repetitive behaviors, lack of social skills, difficulty with speech and non-verbal communication. Autism affects 1 in 36 children in the US and boys are nearly 4 times more likely to be diagnosed. I would like to share my personal experience with autism.
I have a 9-year-old son with Down Syndrome and always knew there was something else going on with him. Hunter had showed autistic mannerisms since a toddler but I thought it was attributed to Down Syndrome. Hunter was afraid of noises, even the low hum of an air conditioner would bother him. He'd rock back and forth, refused to wear any hats or noise cancelling earphones, didn't like certain textures, made throat noises, and began stimming. These behaviors seemed to peek at 5-6 years of age. In fact, I told his primary physician that it felt like stimming had taken over my son's life because he was stimming from the time he woke up until bedtime! That is when I was referred to a place that specialized in autism testing and therapy. My son was officially diagnosed two years ago and I have learned a lot, yet there's still so much more to learn! Autism is a world all its own and there is no one-size-fits-all approach. We are currently on a waiting list for an ABA therapy program. I am appreciative of the specialists that make up Hunter's care team. He is on medication that has helped with some of his disruptive behaviors, and I am hopeful for the future! This does not happen overnight; it has been a trial-and-error process so try to keep an open mind if you are a caretaker. I encourage any parent to connect with others in similar situations. I personally joined a few online dual-diagnosis groups on Facebook. It makes a difference to know that you are not alone as this road can be challenging. -Melisa Miller (Ohio P2P Supporter) March 21 is a day set aside to bring awareness to and celebrate Down Syndrome globally. Trisomy 21 is a genetic condition caused by an extra chromosome in the 21st position. That is why 3/21 was chosen for World Down Syndrome Day.
People with Down Syndrome and those who love and support them continue to advocate for equality and inclusion. Some people choose to wear blue and yellow to show their support on March 21. Others wear crazy and fun socks because chromosomes are shaped like socks! So, how will you be joining us in celebrating WDSD? When you are the caregiver of someone with special needs, you focus on your loved one's physical, emotional, and social needs. You're also their appointment setter and greatest advocate! You must keep track of medical records, therapy schedules, IEPs, and well...everything else! This takes planning and organization. Here are some ways you can organize your life.
DECLUTTER: physically
It can be difficult when searching for Christmas gifts that children with special needs will enjoy. We put together a list of some items we think your kids might enjoy this holiday season including the shopping links for easy access. (No commissions are made and no specific gifts are endorsed by DSAGT) Happy Shopping!
A Stable account is simply tax-free savings for disability related expenses. These savings and investment accounts are for individuals living with disabilities. Stable accounts are made possible by the federal Achieving a Better Life Experience Act (ABLE) of 2014.
This allows one to save and invest money without losing eligibility for public benefits programs, like Medicaid and Supplemental Security Income (SSI). They’re also not subject to federal tax but must be used on qualified expenses. Qualified expenses are geared toward improving one’s health, independence, and quality of life. This includes basic living expenses, food, housing, utilities, house modifications, transportation, assistive technology, healthcare expenses, funeral and burial costs, education, and more. Who is eligible? A disability that began before the age of 26. A person living with a disability for at least one year or expects it to last at least one year. Someone eligible for SSI/SSDI due to a disability. Stable accounts are free to open online and take less than 10 minutes. It requires an initial deposit of $25. You can open an account for someone as their guardian, spouse, parent, grandparent, sibling, or authorized legal representative. Family and friends can contribute up to $17,000 per calendar year. This can be an alternative gift idea for holidays and birthdays! Balance must stay below $100,000 or public benefits might be affected. OHIO STABLE RESOURCES: Customer Service 1-800-439-1653 M-F 9am to 8pm EST [email protected] www.stableaccount.com If there's anything that will teach you to be flexible-it's parenthood. Kids will keep you on your toes, especially with food preferences. Halloween is no exception! Whether you have a special needs child who doesn't like candy or a typical child who prefers cheese over cookies, it's beneficial to have alternate choices. Stay flexible!
DSAGT is very excited to welcome Denise Dahl, MPA to the team! Denise will be serving as DSAGT's Development Director and overseeing the organization's fundraising efforts. Denise is the owner of Epiphany Planning & Development consulting to businesses and governments in strategic planning, economic development, and workforce engagement/training. She also works within the nonprofit world and has over twenty- five years of proven experience. She has been a past certified consultant for Standards
for Excellence Institute promoting excellence in nonprofits, a past member of the Association of Fundraising Professionals, and member of the Grant Professionals Association. She has also run nonprofits, as well as sat on numerous nonprofit boards and fundraising committees. In addition to working for and with nonprofits Denise has taught Nonprofit Leadership for Bluffton University. Occasionally Denise also teaches (and has taught) at BGSU, Trine University, and the previously mentioned Bluffton University, as an adjunct professor utilizing her Master’s degree. Denise has various continuing education certifications from the University of Michigan, Northwestern, Stanford, and has participated in strategic, economic, nonprofit, and workforce development through numerous entities ranging from appointment by the Governor of Iowa to the Vision Iowa Board, writing U.S. Senate Sub Committee testimony, to various local boards such as Northwest Ohio Human Resource Association, Great Lakes Economic Development Advisory Board, and the University of Toledo’s College of Business’s Advisory Board. |